Dates Announced for the 6th Annual ADLER PADDLER
A Paddle To Raise Awareness for Aortic Health
In Association with The John Ritter March 12th, 2016
Belmont Shore, Long Beach, Ca
In 2010, Jodie Nelson was training to be the first woman to Stand Up Paddle Solo from Catalina to Dana Point to raise funds and awareness for Breast Cancer, Her good friend and avid Stand Up Paddler Steve Adler (Seal Beach Local) died unexpectedly to what we later found out was a genetic disorder that caused him to suffer an acute aortic dissection. Some how Jodie pressed on with the crossing less than two weeks later, as she knew that's what her good friend and training partner Steve Adler would have wanted her to do. On March 28th, 2010 Jodie did the crossing with ADLER written on the back of her shirt. During her grueling 9 hour crossing she has the company of a rare minke whale tag along by her side for almost two hours. This whale she named Larry, help Jodie garner the attention she needed to make her fundraiser successful. After achieving international media coverage and even going on the Ellen DeGeneres show, Jodie raise over $120,000 for two different breast cancer education and awareness foundations.
After the paddle in 2010 Jodie started her own non- profit, Paddle With Purpose and in 2011 Paddle With Purpose teamed up with the John Ritter to help raise awareness for the disorder that claimed the life of her good friend Steve Adler. She hopes to educate about the importance of knowing their genetic history and proper testing so that other lives may be saved. Because of Steve’s death and with the help of the John Ritter Research Foundation, Steve’s brother was diagnosed with the same disorder, and his brothers life was saved!
Proceeds from this fundraiser go directly to the John Ritter Foundation, educational material will be on hand provided by the TADcoalition. Amy Yasbeck, John Ritter’s Widow, has been at every Adler Paddler for the past 5 years.
We hope that this race/paddle will appeal to serious racers, paddlers interested in exploring the world of racing, recreational paddlers, families, friends, as well as people who just want to be a part of something for a really great cause.
This is a free event but we will have event T-shirts and a raffle in lieu of a donation to the John Ritter Foundation. People who don't have a SUP board, can “rent’ a board for a donation to the cause reservations must be made in advance. Registration starts as early as 7:30 am. Race starts at 9am.
Please help us spread the word and come on out Sunday, March 12th 2016 for the 6th Annual ADLER PADDLER.
“The TAD Coalition is thrilled to support Adler Paddler. Jodie’s commitment to raise awareness of thoracic aortic disease in honor of her friend is admirable, and is sure to help save lives, ” says Jonathan Martin, MS, Coordinator of the TAD Coalition
“The effects of Thoracic Aortic Disease can be corrected when properly tested, diagnosed, and treated. The power of knowing your family history is so crucial when dealing with a disease like this. After loosing my good friend Steve Adler to a misdiagnosed Dissecting Aortic Aneurism i want to honor him by raising money for the continued research and awareness through tools like the “Ritter Rules” and by supporting amazing organizations such as the John Ritter Foundation for Aortic Health, the John Ritter Research Foundation, and the Thoracic Aortic Disease Coalition. Amy Yasbeck and the John Ritter Foundation have played a pinnacle role in helping families understand this disease and get the proper treatment. My goal would be to help raise money to give them the ability to bring on another genetic councilor to help families through the process, and ultimately save lives from unnecessary deaths.”
Jodie Nelson, Founder, Paddle With Purpose
ABOUT PADDLE WITH PURPOSE
Founded in 2010 by professional surfer Jodie Nelson, Paddle With Purpose is a 501c3 non-profit organization created to serve as a philanthropic extension of the sport of Stand Up Paddling. Grounded on the premise that empowerment motivates and inspires, PWP exists to raise awareness and funds for a variety of causes and movements. With over $150K raised through organized races, community events and an integral presence the action sports industry, PWP has been proven a successful and credible agent for action and change.
ABOUT AMY YASBECK & THE JOHN RITTER FOUNDATION
Amy Yasbeck was married to legendary comic actor John Ritter who succumbed to an acute aortic dissection in 2003. Since that time, she has devoted herself to promoting awareness, of this devastating disease. She created the John Ritter Foundation for Aortic Health to provide the medical, scientific and lay communities with an opportunity to explore their common goals.
In 2010, Ms. Yasbeck joined with Dr. Dianna M. Milewicz, M.D., Ph.D., to establish the John Ritter Research Program in Aortic and Vascular Diseases at UTHealth in Houston. Together, they are working to prevent premature deaths due to thoracic aortic disease by improving diagnosis, treatment, and public awareness.
Also in 2010, along with the Thoracic Aortic Disease Coalition, she created The Ritter Rules: a set of life-saving reminders to recognize, treat and prevent thoracic aortic dissection.
In the book, "With Love and Laughter, John Ritter," Ms Yasbeck looks back with memories and anecdotes about her life with her late husband. She shares her deeply personal and ultimately hopeful journey of surviving the devastating loss. She recounts the journey that led her to become an advocate for Aortic Disease awareness and to initiate the call to action for the public and medical communities alike.
The Thoracic Aortic Disease (TAD) Coalition is a group of organizations and individuals who share a common mission of preventing premature deaths due to thoracic aortic aneurysm and dissection. With release of new Treatment Guidelines for Thoracic Aortic Disease released in March of 2010 from the American Heart Association (AHA), The American College of Cardiology (ACC), and other medical professional organizations, the Coalition is coordinating efforts to help promote the Guidelines to healthcare professionals and to raise public awareness of these aortic diseases and the associated risk factors. The TAD Coalition has three primary goals:
• Increase public awareness of both genetic and environmental factors that put people at risk of thoracic aortic aneurysms and acute aortic dissections
• Provide educational materials concerning the symptoms, clinical evaluation and medical management of thoracic aortic disease
• Improve the diagnosis and treatment of acute aortic dissections in the hospital emergency department
"The TAD Coalition is playing a critical role in helping to maximize the impact of the new thoracic aortic disease diagnosis and management guidelines," said Loren Hiratzka, MD, who chaired the writing committee for the American College of Cardiology and the American Heart Association. "While these new guidelines will inform and update the medical community, the TAD Coalition will inform the public of risk factors and symptoms for these aortic diseases. Together, we hope there will be better outcomes and, certainly, a reduction in the number of deaths from aortic dissection and rupture due to earlier diagnosis and improved medical management."
Members of the TAD Coalition include the Ehlers-Danlos National Foundation, Ehlers Danlos Syndrome Network CARES, GenTAC (Registry for Genetically Triggered Aortic Aneurysm and Dissection), International Registry of Acute Aortic Dissection (IRAD), John Ritter Foundation for Aortic Health, Loeys-Dietz Syndrome Foundation, National Marfan Foundation, Nebraska Methodist Health System and the Specialized Center of Clinically Oriented Research (SCCOR) on Thoracic Aortic Aneurysms and Dissections, and the John Ritter Aortic Research Program. The American Heart Association and the American College of Cardiology have partnered with the TAD Coalition to promote awareness and adoption of the new guidelines.